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Showing posts from March, 2021

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Video: "One in a Million" By Owen Cant

Jungle Babbler Series: International Women's Day Video by Novoto

Welcome to our new  Jungle Babbler Series.   In this series, we look at highlighting wilderness-focused travel companies, charitable organisations & individuals, who have an insight into the wilderness, the communities they associate or work with, and programs. The main objective is to know how they plan on sustaining the future with the work they are carrying out and the ways in which they give back something to communities living there.  Enjoy  Jungle Babbler.   Our first post looks at highlighting a volunteering travel company based in the UK called Novoto. We highlight a video by Novoto made on International Women's Day and also the work they are doing and engaging with the women's movement.   Let’s change our perspective! While celebrating this year’s Women’s Day, let us take a moment to appreciate all the women around the world working in the travel industry, who make our adventures so memorable.  In a post-pandemic world, let’s reciprocate their hard work! Women empo

Having a disability & being a parent carer during Lockdown

  This pandemic has certainly changed the way we live lives and how we care for people and family around us that are vulnerable and living with any long-term medical condition.  As a family, It all started around the middle of February 2020 for us as we knew things were not going well from this new virus called COVID 19 and that it had hit many parts of the world and especially with people dying in  China and Italy. To protect our daughter, my wife & me went into a total no contact and shielding from the end of February 2020.  So this meant no going out to shops and staying at home and shielding one another. It was difficult to start with it but as time got on we came to terms with this new life and knew who to rely on for help and assistance.  Sad this got many of the health services to come to a halt that was caring and supporting our daughter and for over two months we had no help. We were in crisis as we needed something for our own sanity and health - as caring for our dau

Prof. Sanjay Sisodiya giving an Overview of Alternating Hemiplegia of Childhood (AHC)

  An Overview of Alternating Hemiplegia of Childhood (AHC) by Sanjay Sisodiya Professor of Neurology UCL Queen Square Institute of Neurology and Medical Advisor of Alternating Hemiplegia of Childhood (AHC UK) Charity. Thanks to Owen Cant for making this video. Year of recording: 2020 About Prof. Sisodiya Sanjay Sisodiya is a professor of neurology at UCL Institute of Neurology and an honorary consultant neurologist at the National Hospital for Neurology and Neurosurgery and the Epilepsy Society . Sanjay studied medicine at the University of Cambridge and Guy’s Hospital and trained in Neurology in Oxford and at the National Hospital for Neurology and Neurosurgery. He was awarded a Ph.D. for working in brain magnetic resonance imaging in epilepsy. His key interests are in epilepsy, difficult-to-treat epilepsy, epilepsy genetics, and treatment-response genetics, and translational neurology, which are also his key research interests. He runs epilepsy and specialist epilepsy genom

Video: "One in a Million" By Owen Cant

My wife's cousin made this last year. Thank you for everything you’ve done to raise awareness for Alternating Hemiplegia of Childhood . It’s hard to talk about life with AHC at times but my wife and I realised that unlike more common conditions there is no awareness without the parents sharing often painful stories. This is a little glimpse into how you keep going living with AHC. Sometimes many of the things Anya goes through are things too painful to share and videos too horrific/traumatic to share. We are so grateful to Owen to do this film and to share Anya’s, and our story, with respect and care. So excited it’s now a finalist in the International Rare Disease Day Film festival in Berlin on Rare Disease Day 28th of February 2021 ! This is what Owen Cant had to say about the making of his video: Thank you to everyone who put so much of their time and effort into making this. As part of today's rare disease day 2021- I'd like to share a film I made with you, which I&