A Walk in the Park

Anya's medical condition showcased on BBC Scotland News at Nine. Attaching the write-up below: My one-in-a-million daughter is a 'human timebomb' 21 March 2019 Share this with Facebook   Share this with Messenger   Share this with Twitter   Share this with Email   Share Image caption Anya can sometimes lose developmental skills and have to re-learn them all over again An Edinburgh mother has described her 18-month-old daughter as a "human timebomb" after being diagnosed with a one-in-a-million condition. Anya Behl is one of only two Scots with the rare illness, with only 500 cases in the world. Doctors describe it as being like having seven diseases all at once. Katherine Behl said she wakes every morning not knowing if it will be a normal day or one where her child has a life-threatening episode. 'Thought she would die' Anya was born in July 2017. When she was just 10 weeks old, she had her first experience of

Our one in a million daughter Anya on BBC Scotland at Nine. Sharing the video Also attaching the JustGiving page link for people wanting to make a contribution. Do leave a comment and have your say. Thank you so much.

Anya Behl suffered a stroke-like attack when she was 10 weeks old Doctors were baffled before diagnosing alternating hemiplegia of childhood  Only 500 families worldwide are coping with AHC which has no treatment Researchers are hopeful to change lives with therapy in its first stages of trialling It took four months for doctors to figure out what was wrong with Anya after her first stroke-like episode at ten weeks old which was 'terrifying' for her parents The family of a toddler with a one-in-a-million condition that gives her episodes of paralysis are trying to raise money for groundbreaking research. Anya Behl, who is 18 months old, was diagnosed with alternative hemiplegia of childhood (AHC), a neurological condition which can cause numbness or full loss of feeling and movement. It took four months for doctors to figure out what was wrong with Anya's after her first stroke-like episode at ten weeks old. Her parents, Abhishek and Katherine Behl, from

This was the first report we were featured in and the reporter Kevan Christie took the interview a day before International Rare Disease Day. It created a lot of buzz and was featured on other sister papers that are owned by the Scotsman. Scots toddler with one-in-a-million condition hoping for rare gene therapy Kevan Christie Katherine Behl with daughter Anya, who is 18 months, and father Abhishek. Picture: Lisa Ferguson The family of an 18-month-old Scottish girl who has a condition so rare it only affects one person in a million are raising funds for a groundbreaking gene therapy project in the US.  Anya Behl suffered her first episode of what would later be diagnosed as alternating hemiplegia of childhood (AHC) at ten weeks old in October 2017.  Those with the lifelong condition are described as “human timebombs” as the illness – which is like having seven diseases at once, including stroke-like paralysis and symptoms of Parkinson’s disease – can strike at anytime.

We were interviewed by the Edinburgh Evening News where they highlighted Anya's rare medical condition. I have attached the report on this post. The Edinburgh Evening News report was written by Kevan Cristie ‘One in a million’ Edinburgh toddler set for rare disease trial in US KEVAN CHRISTIE Katherine Behl with her 18-month daughter, Anya, with dad Abhishek. Pic: Lisa Ferguson The family of an 18-month-old toddler who has a condition so rare it only affects one person in a million are raising funds for a groundbreaking gene therapy project in the US.  Anya Behl, suffered her first episode of what would later be diagnosed as Alternating Hemiplegia of Childhood (AHC) at 10 weeks old in October 2017. Those with the lifelong condition are described as ‘human timebombs’ as the illness which is like having seven diseases at once - including stroke like paralysis and symptoms of Parkinson’s disease, can strike at anytime.  Her parents Abhishek and Katherine told how everyth

Anya and our interview on the Scottish Daily Record Newspaper on International Rare Disease Day. The report was written by Paul Rodger,  ------------  Anya Behl's parents Abhishek and Katherine say their lives changed forever when Anya let out a "terrible scream" as her eyes started to flicker - during her first episode of the rare condition. By Paul Rodger Anya Behl suffers from the rare condition Alternating Hemiplegia of Childhood  (Image: SWNS) Anya Behl suffers from Alternating Hemiplegia of Childhood (AHC), a neurological condition which causes stroke-like paralysis. The family of a toddler with a rare condition which is said to affect one in a million people are raising funds for groundbreaking gene therapy in the US. The 18-month-old tot experienced her first episode of AHC at 10 weeks old in October 2017 and those with the lifelong condition can be described as 'human timebombs'. Her parents Abhishek and Katherine say their