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Video: "One in a Million" By Owen Cant

Evolution Lost (Video)


A must watch video on Evolution Lost
Thanks to Zoological Society of London / Globe International and Earth Touch to come up with this amazing video

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‘One in a million’ Edinburgh toddler set for rare disease trial in US: Reports Edinburgh Evening News

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Signing up to Alternating Hemiplegia of Childhood (AHC) UK Newsletter.

Yes people, It is finally here and we are working on sending out updates to various people about Alternating Hemiplegia of Childhood UK via a newsletter and the chair's update.  If you would like to be involved and to be kept informed about the various updates that are happening with AHC in the UK and all over the world -  Please sign up to the new AHC UK Newsletter for updates ( Click on & add your name/email on this attached link : http://eepurl.com/gD2M3n ) We look forward in sharing our updates with you all.

Anya is 1 in a million: Funding for all AHC Kids & Gene Therapy Research

We are so grateful for all the amazing support, messages and generous donations to research from our wonderful family and friends in 2018.  A  heartfelt thanks. We have been blown away by your kindness!   In February 2018 at 6 months old, Anya was given the diagnosis of  Alternating Hemiplegia of Childhood (AHC) after genetic testing for the  ATP1A3 gene. This is an extremely rare condition, affecting one in a  million; it arises from a chance, non-inherited error. It is something we  had neither heard of nor something we could ever have envisaged our  precious first-born having to struggle with. It’s been a very difficult year and we’ve seen symptoms (sometimes life-threatening) that we wouldn’t wish any parent to witness.  AHC has effects beyond the neurological ones and sadly Anya has had breathing and cardiac difficulties too. Almost all children with AHC have physical, cognitive and developmental disabilities across a spectrum. By the age of two 50% have epilepsy; and